“Being a patient changed my life forever,” Part One — Shining a light on Isabelle’s story this Amyloidosis Awareness Month
At Prothena, we feel fortunate to hear from patients whose stories inspire us to continue to innovate for those who are in dire need of new treatment options. Each story fuels our commitment to keep patients and their needs at the forefront of our efforts. We are equally grateful for our relationships with advocacy organizations, which also help us to maintain our patient-first focus.
Today, we are honored to share with you the uplifting story of Isabelle – having faced being diagnosed with AL amyloidosis and now, living in complete remission, a powerful advocate for the community.
Diagnosed nearly 30 years ago, Isabelle endured a grueling stem cell transplant. It took years before she regained full health, but now, she says her health is exceptional.
Isabelle went on to found the Amyloidosis Research Consortium (ARC), a nonprofit organization dedicated to driving advances in the awareness, science and treatment of amyloid diseases. We will share more about Isabelle’s journey and the mission of ARC later this month. For now, we invite you to hear firsthand from Isabelle as she reflects on her diagnosis, treatment and progress in the field since she was first diagnosed. Learn more about AL amyloidosis here.